FundAME (Spain) 
www.fundame.netSpinal Muscular Atrophy Foundation (FUNDAME) is a non-profit, private foundation, established in 2005 and made up of patients affected by SMA and their relatives. FUNDAME strives to find ways to improve the quality of life of those affected by SMA and to promote research into this disease.
FUNDAME supports research at both national and international level, in order to bridge the gap between today and the day a cure for SMA is available. In the meantime, FundAME seeks ways to improve the quality of life of those affected by the disease.
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Antionio Hitos Presidente |
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María Dumont Directora |
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Maria Grazia Cattinari Directora médica |
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Inés Drake Directora de comunicación |
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Carolina Pachecoy Responsable del registro de pacientes y comunicación interna |
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Mencia Lemus Delegada ante SMA EUROPE-PROJECT Leader del calendar project |