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FundAME (Spain) fundame

www.fundame.net

Spinal Muscular Atrophy Foundation (FUNDAME) is a non-profit, private foundation, established in 2005 and made up of patients affected by SMA and their relatives. FUNDAME strives to find ways to improve the quality of life of those affected by SMA and to promote research into this disease.

FUNDAME supports research at both national and international level, in order to bridge the gap between today and the day a cure for SMA is available. In the meantime, FundAME seeks ways to improve the quality of life of those affected by the disease.

Alfonso Gonzalez IT Manager FundAME Antionio Hitos
Presidente
Alfonso Gonzalez IT Manager FundAME María Dumont
Directora
Maria Grazia Cattinari Medical director FundAME Maria Grazia Cattinari
Directora médica
Alfonso Gonzalez IT Manager FundAME Inés Drake
Directora de comunicación
Alfonso Gonzalez IT Manager FundAME Carolina Pachecoy
Responsable del registro de pacientes y comunicación interna
Maria Grazia Cattinari Medical director FundAME Mencia Lemus
Delegada ante SMA EUROPE-PROJECT Leader del calendar project
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